Our Mission in action
Since 2013, SCACURE has stood with people and families affected by sickle cell disease. What began across 24 counties in Southern Indiana now reaches more than 30 counties throughout Indiana and the Midwest. Our name—SCACURE, or “Sickle Cell Anemia Cure”—reflects our promise to educate, engage, and empower our community while advancing hope for better care and a cure.
How we serve our community
We provide services and support in the following program areas.
NEWBORN SCREENINGS
We partner with the Indiana State Health department supporting families after a positive newborn screening with education, provider connections, counseling, and follow-up care.
EDUCATIONAL SCREENINGS
We provide training, education, and ongoing support through a broad network, helping healthcare professionals strengthen knowledge and expertise through targeted outreach programs.
COMMUNITY ENGAGEMENT
We engage the broader community where people affected by sickle cell are unserved or underserved.
Real stories. Real impact.
“SCACURE helped our family find answers and support when we needed it most.”
— Parent and caregiver
“Awesome to be able to get informed and educated information of such a horrible disease. Be connected.”
— Program participant
“A great organization with helpful resources from advocates whose passion for combatting this disease is truly infectious. Thank you Jacquie and SCACURE for being a pillar in our community.”
— Community member
“The resources provided by SCACURE have been instrumental in helping us navigate the daily challenges of caregiving.”
— Dedicated Caregiver
“Their commitment to education and empowerment is inspiring. I feel heard and supported for the first time in years.”
— Community Advocate